BEDFORD - JULY 27, 2023 - Ethan Holsapple has three more months in Maryland with isolation, treatment, and recovery. We want to make sure both of his parents can walk with him all the way to the finish line.
Ethan stands with his parents Bedford Fire Department Battalion Chief Jeremy Holsapple and Amy
The proceeds from the event will help support Ethan Holsapple. Ethan 14 years of age was diagnosed with Histoplasmosis and later CD40 Ligand Deficiency.
"We are grateful to have a few a few minutes of your time.
We are the Holsapple's. I am Jeremy and my wife's name is Amy. I am a firefighter at the Bedford Fire Department in Bedford, Indiana and we attend Hilltop Pentecostal Church in Avoca, Indiana.
God has been so good to my wife and I throughout our 26 years of marriage. Among the many blessings we have experienced are the wonderful children that God has given us. Our oldest is Michael, along with his wife Caitlyn, followed by Luke, then Hayden, and lastly Ethan.
Ethan David, the youngest, was born on August 24, 2009. What a joy and a blessing he has been to our entire family.
Up until the last sixteen months, Ethan was just another rambunctious, healthy little boy but by December 2021, Ethan had begun to suffer from a severe gastrointestinal issue. Suffering from severe pain, he was unable to eat and was losing a half pound of weight per day as his health continued to deteriorate.
Ethan was admitted to Riley's Children Hospital in Indianapolis where he was a patient for most of 2022. Ultimately, Ethan was stabilized and diagnosed with Histoplasmosis in his intestinal tract and began a one year treatment regimen to rid his system of this infection.
It is estimated that around 60% of people living in southern Indiana and southern Ohio have
Histoplasmosis in their bodies but their immune systems keep it suppressed.
The main question Ethan's physicians had was why his immune system had failed to prevent this infection.
By August, after extensive testing, Ethan was diagnosed with CD40 Ligand Deficiency. CD40
Ligand Deficiency is an extremely rare immunodeficiency disorder that is found in only 1 in 500,000 male children.
In a nutshell, the absence of ligand prevents T-cells from interacting with other cells so they can produce antibodies. Consequently, it leaves the individual with no immune system.
Through God's providence, Ethan was referred to the National Institute for Health in Bethesda, Maryland.
He has been placed under the care of Luigi D. Notarangelo M.D. and his team of physicians. Dr.
Notarangelo is one of the foremost experts in the world on CD40 Ligand Deficiency.
Ethan has been scheduled for a bone marrow transplant in late June and will be hospitalized for at least four months. He is currently undergoing weekly transfusions until the time of his transplant.
We move forward trusting God to undertake in this matter and we are continually amazed at his faithfulness to us on a daily basis. We praise him for all he has done thus far.
Words cannot express the love and appreciation we have for our family, friends, and also our church family. The love, support and prayers have meant so much to us. It has been a wonderful blessing to have spent our lives with so many wonderful people.
Thank you for your time and may you experience an abundance of God's blessing and lovingkindness."
Please join us for our pancake breakfast and yard sale, in support of this effort.
On Wednesday, July 26th was the last day for yard sale donations, for additional information contact Hilltop Pentecostal Church if you need to set up a pick-up or drop-off time.
#+1 (937) 510-0568
"Thank You for the love and generosity you have already shared with Ethan,"
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